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MS WEBSITES, RESOURCES & COMMUNITIES

After the initial shock of hearing those initials (MS), make a decision on how you want to integrate this news into your life. You do have a choice on how you handle it emotionally and what action steps you take.

Your attitude at this time of adversity is a key factor in how you get through this. First, make sure that you do your research. Knowledge is Power! You have options! A while ago, a few doctors would have told you to "go home and rest, there's nothing you can do" (that must have been real encouraging!) Well now, this isn't the case. Many doctors are encouraging their MS patients to educate themselves on the disease and to keep themselves healthy by staying active and incorporating an individualized exercise program. There is a lot of information available to you. Here are just a few websites where you can educate yourself on this disease and find out how others are dealing with the diagnosis:

National Multiple Sclerosis Society http://www.nationalmssociety.org
The National MS Society’s website is a wealth of knowledge and valuable information! You can easily find your local chapter by visiting http://www.nationalmssociety.org/mycommunity/index.asp

The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs— including support for the newly diagnosed and those living with MS over time.

Multiple Sclerosis Society in the United Kingdom http://www.mssociety.org.uk
The MS Society is the UK's largest charity for people affected by Multiple Sclerosis (MS) - about 85,000 people in the UK. The mission of the MS Society in the UK is "to enable everyone affected by MS to live life to their full potential and secure the care and support they need, until we ultimately find a cure". The society also provides support and guidance to outside agencies and individuals, including MS Society branches, to enable them to provide quality information to those affected by MS.

Multiple Sclerosis Society of Canada http://www.mssociety.ca
The mission of the Multiple Sclerosis Society of Canada is to be a leader in finding a cure for multiple sclerosis and enabling people affected by MS to enhance their quality of life. This site offers a variety of links for the newly diagnosed, kids, caregivers and families, health care professionals, employers and many other publications and educational resources.

Multiple Sclerosis Foundation http://www.msfocus.org
A predominantly service-based, non-profit organization, with a primary mission of ensuring the best quality of life for those coping with MS by providing comprehensive support and educational programs. The MSF strives to help make A Brighter Tomorrow by supporting research into its cause and cure as well as investigations of various medical and complementary treatment options.

Multiple Sclerosis Association of America http://www.msaa.com
The mission of the MSAA, a national non-profit organization, is to ease the day-to-day challenges of individuals with multiple sclerosis and their caregivers.

Multiple Sclerosis International Foundation http://www.msif.org/language_choice.html
The Multiple Sclerosis International Federation (MSIF) was established in 1967 as an international body linking the activities of National MS Societies around the world. Their vision is “A world without MS!”

Shared Solutions ® http://www.sharedsolutions.com
One source for peer support, online community, teleconferences, and therapy assistance. Includes MSWatch®, MSUniversity® and more…

MSWatch®
Dedicated to helping manage multiple sclerosis, MSWatch is one of the largest online communities for people with MS and their CarePartners in the US. Members have access to the latest information and research, answers from experts, and important tools that help manage multiple sclerosis and are automatically enrolled in MS University®. This website is a place where you can share thoughts with others who have MS via discussion groups and chat rooms, find new and practical tips for managing MS, read something that may put a smile on your face (just when you need it) in the humor section, and far more.

MS University®
Attending MS University® means enhancing your MS knowledge ten-fold! This site provides access to a broad range of MS information, resources and knowledge presented through a variety of on-line course offerings.

A National Town Forum on Multiple Sclerosis http://www.frontiersinmedicine.com/MS
Six leading medical authorities addressed the most common patient concerns and answered questions that patients and caregivers have about the diagnosis, treatment, and management of MS.

Treatment and Disease Information

http://www.copaxone.com

http://www.nccam.nih.gov
(National Center for Complementary and Alternative Medicine)
 

 


Other resources on my site:

MS FACTS & STATISTICS

INSPIRATIONAL STORIES OF PEOPLE WITH MS

 

 

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“Health is not just the absence of a disease. It’s an inner joyfulness that should be ours all the time. A state of positive well-being.”
~ Deepak Chopra, Journey into Healing


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Maria Lesetz, Certified Life Coach, specializing in Health & Wellness
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